Hometown Spotlight

Hometown Spotlight: Hope in Motion

Hometown Spotlight: Hope in Motion

Greenville, S.C. (WSPA) -

This week for Hometown Spotlight were are getting to know more about events in the Upstate that are friendly for all abilities. 

For those living with a disability in the Carolinas there are activities available that families of all abilities can enjoy. 

One family 7 News met while they were having fun skating on the ice at The Bon Secours Wellness Arena, had recently been given new hope for their daughter with a physical disability. 

They are told this could help her make big gains when it comes to improvement with the Spinal Muscular Strophy. 

Claire Worthy is ten years old. She lives here in Greenville and is the first child to receive a newly FDA approved drug to help her gain more movement in her body. 

Her custom wheel chair gets her where she wants to go, she said, like "Skate Roll and Stroll at Bon Secours Wellness Arena a disability friendly skate day. 

Claire has a neuromuscular disease called Spinal Muscular Atrophy.Her chair helps her sit comfortably but standing and walking aren't possible yet, on her own.  

Clair attends therapy at home and at Therapy 360 once a week. She also takes a drug called Spinraza.

Therapist Melissa Seward said when the proteins in Claire's muscles break down, she can't rebuild them like most people can.

On December 23rd 2016 the FDA approved this treatment it helps rebuild the muscle proteins and Claire may be able to walk one day.

The Well also works with GreenvilleCan, an organization working with businesses and companies to bring awareness to disability friendly events. 

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