An Upstate family is searching for a perfect match bone marrow donor that could save their 13-month-old’s life.
“She’s very hyper! Very cuddle! She loves just to love all over you,” Hailie Hyman, Maci’s mom, told 7News.
Hailie said her daughter loves to play. But recently, Maci’s playtime takes place in a room at Prisma Health Children’s Hospital in the Upstate where she’s been hospitalized since January.
“At her one year check-up, they did the little finger prick. Her regular blood work,” Hailie said. “They came back and said her platelets were low.”
Hailie says that test changed their lives forever.
“So they did a few more test… took about one to two weeks and then they came back saying it’s MDS,” she said.
MDS, or Myelodysplatic Syndrome, is a life-threatening syndrome that disrupts the bone marrow production of healthy blood cells.
It’s common among seniors citizens.
“So it’s very rare for her to have it,” said Hailie.
Physicians don’t know what causes MDS since there are no early signs to detect it. There are also no known cures, which Maci’s family said is the hardest part.
“It’s scary because you don’t know the future,” Hailie told 7News.
However, one treatment could spare Maci’s life.
“The bone marrow transplant is the only thing that can 100 percent cure it, and that’s if it takes,” Hailie said.
Now the search is on for a donor.
“We are trying our best to get as many people as possible on the BeTheMatch.org,” Hailie said.
Hailie says the national registry matches donors with a recipient and the more people that sign-up, the more chances her daughter has of surviving.
“You could save her life and that’s all we want right now,” Hailie said.
The test to find out if you’re a match is simple and free for anyone. Click here to learn more.
You can keep up with Maci’s journey on social media by clicking here.
A GoFundMe has been started to help out Maci’s family with medical expenses. To donate click here.